Thursday, December 31, 2009

Thursday December 31

Dave had a good day today..he went with Kip and played "Golden Tee". Although his back hurt when he got home he thought it was worth it! He seems to be better since his meds were changed a bit. I always hesitate to say that because the bottom always falls out soon there after....It is so good to see him have a good day and do some of the things that he once enjoyed. He has eaten well today and has started the protein drink in addition to food.
We wish all of you a happy and healthy 2010...once again I have to say how grateful we are to have such wonderful and supportive friends and family! Dave and I are fortunate to have the kids that we have also....We are proud of them and glad that they have found happiness in their lives.....blessings to all......

Tuesday, December 29, 2009

Tuesday December 29th

Today was a very normal and uneventful day....YEA!!! We got up and went to the store, Dave was hungry for "Tater Tot Casserole"...he fixed one himself......Actually that is the norm here in the Pettay house.....Dave is going to check into the protein drinks at GNC tomorrow, he is determined to gain some of his weight back...he CAN HAVE some of mine!!!! All in all it was a good day.....and for that we give thinks...blessings to all.....

Monday, December 28, 2009

Monday December 28th

We are home and both really tired. Thanks again to Kip and Leeann for taking us and to her parents Gary and Jan for letting us use their van. It made the trip up there much more comfortable and easier for us all.
Dave is no better BUT the cancer has gotten no worse....so I guess that is good news.There are some nodules on Dave's liver but as of now they are nothing definitive. Dr. Doolittle wants him to undergo more treatments. He feels that since the cancer came on so quickly and severely that the Interleukin is keeping it from progressing at the same rapid pace. A close friend of ours has been trying to coordinate his work schedules to come see us..... Dr. Doolittle has scheduled the treatments around our friend 's trip to Kansas....Dr. D. is definitely one of the really good guys!!! We are set to begin treatments on January 11th. Dave is really focused on gaining weight and doing what he can to be physically and emotionally ready for this next round.
Thanks to all for your support....I read the blog comments and they inspire me to stay strong...love and blessings to all......

Sunday, December 27, 2009

Suanday December 27th

We are safely in KC sitting in our warm and cozy room. Kip and Leeann went for some munchies and then I think we are all going to chill in our room and watch some tv before turning in for the night. The roads were perfect coming up today but you could certainly tell that this part of the state got alot more snow than we did in Wichita. Dave's appt is at 10:30 in the morning. They will do a blood draw and then his appt. with Dr. is at 11:20. We will know alot of details after that consultation (I HOPE)....please do not call me....I will get word out via this blog and also thru Facebook. We are not always in a place that I can take phone calls and our appointments are not always on schedule. I am unbelievably tired and just about all tapped out....so I will let you know as soon as I can...thanks so much for your understanding in this......blessings to all ...I do continue to read your comments on the blog...they keep me going.....

Saturday, December 26, 2009

Saturday December 26th

We leave for Kansas City tomorrow. Kip and LeeAnn Schultz borrowed her parents van so that we can all ride comfortably together. We have reservations at the Drury right off I35 and not too far from the drs. office. My mom has been here since last Tuesday and has had trouble with her balance, at times she has been confused not being in her own home and environment. She fell twice while she was here, the last time she got a pretty good black eye. Some friends have offered to let her stay there until they can her drive home on Monday. Dave and I were just not at all comfortable with leaving her at home by herself (not to mention that she put cigarettes in the trash can twice that were still smoking) UGH...I love my house.....Thanks again to all of our friends...with you all things are possible....we send our love and our blessings!!

Friday, December 25, 2009

Christmas Day

Dave felt better today than yesterday. I took it upon myself to change his meds a bit and he was able to eat (small portions)...but he ate and said that it was good to be able to sample some of the goodies that we have laying around the house. His pain was more under control also....we will address that on Monday. It is just something that needs to be reviewed and monitored frequently. We are about 99% sure that we are off to KC on Sunday for the Monday appointment. Of course the weather is at the basis of our final decision.
I want to thank everyone for the "blog comments" I do read them, but do not have them posted for everyone to see. I prefer the blog to be a journal...that way it is not confusing.....and the comments are private....
Hope everyone had a great Christmas Day...blessings to all!!!

Thursday, December 24, 2009

Thursday December 24th

Our day was filled with ones that we love...Matt and Cayte, Chris and Bailey, my mom, and the Schultz family was here. We had plenty to eat and exchanged our gifts. I wish that Dave had felt better. He has been in bed most of the day and has only managed to keep a couple of bites of food down. He came in the front room to be with us as we opened gifts, but then went back to bed. We all kept our spirits as high as we could..Santa came by to visit us tonight.....and that brought not only a smile to our lips but tears to our eyes as well. What a wonderful support system we have!......Dave's back is painful and his appetite is at zero. I am going to ask the Dr. on Monday for stronger pain meds and something to stimulate appetite. He simply cannot continue in this way. Thank you again for the prayers.....we send all of you our love and best wishes for a wonderful Christmas day!

Wednesday, December 23, 2009

Wednesday December 23rd

The past 2 days have been really busy. Monte Schreiner organized a get together here at the house for Tuesday night. What fun we had...just like old times with friends that are priceless in our lives!! All I did was open the door...everyone brought the fixings for a great party. Thanks to everyone it was a really fun night....Dave and Monte went to see Avatar today...it was good for Dave to get out without me....I am sure that he is tired of all of the togetherness that we have shared for the last 4 months......Tomorrow we are having Christmas at our house. I have turkey and ham...Cayte is not working and Chris is has the day off so we are doing our big day early. It will be fun to have everyone here. Schultz's are coming over too with their boys, my mom is here...I love the house being full of life and energy....Dave and I want to thank you again for the blessings that you have brought into our life....hug one another and believe the best in those around you.......

Monday, December 21, 2009

Monday December 21st

Our internet has been dowm..you have to love that Cox "High Speed" internet service!! Yesterday was another good day. We went to the show and saw "The Blind Side" it was a good movie....some of our neighbors came by Fred, Jane, Melissa, Tim, Christine....brought us a card with a gift inside to boost our spirits....thanks so much... Today Dave had his PET Scan, we will not know anything until next week. Tomorrow he is scheduled for a CT Scan but again we will NOT know anything until our appointment on the 28th. Monte Schreiner has organized a get together at our house tomorrow night....I am looking forward to it.....hummmm.....not sure what we are in for...but I know that it will be fun!!! Hope everyone is enjoying the break....blessings to all..

Saturday, December 19, 2009

Saturday December 19th

Today was a good day for Dave. We had lots of company and that always seems to cheer him up....Sidney, Lauren, Dylan, and Brennan came over with a tin of almonds, cashews, and peanuts...it was good to see his students and former TA....thanks guys.....Dave's sister and her husband came over from Hutch. Diane brought Dave a big pot of potato soup and he ate 3 bowls full...it was the first he had eaten in 2 days....thanks Diane you worked some magic...Monte Schreiner came and we had a great visit.....Blessings to all .....we have so much support..and to the friend who told me to keep a light burning brightly at night...you do the same... we are thinking of you, and wish you the best.......

Friday, December 18, 2009

Friday December 18th

Today started out on a high note. Dave wanted to go to the DAV, his driver's licence is due in January and he was in the mood to get it taken care of early. The process took about 30 minutes and it really seemed to wear him out. He slept most of the rest of the day. His appetite is gone again and he says that he just doesn't feel well. Other than an 8oz "Boost" I haven't gotten him to eat anything today. He knows that he should eat, but he just doesn't have a desire for anything....I feel very sad......

Thursday, December 17, 2009

Thursday December 17th

Yesterday (Wednesday) was one of those days that we just stayed inside and watched old movies on Turner Classic Network. Holmes Andrus came by with some of his students from church and they sang to us. It was so appreciated and very cold...thanks to those kids for their efforts!!! Today was a good day. Dave seemed to have some energy so we went to his school to check in with his bosses. Jim and Jess have been so great to both of us...very supportive....Dave went shopping with me, I had a few last minute things to get for the kids, he even felt like going to Randy Mark's basketball game for awhile this evening. One of his friends (Keith) had offered to come by to get him, but Dave's mom and aunt were here so the timing wasn't right for that......I am so grateful for a day like today....hope there are a few more in his future......

Tuesday, December 15, 2009

Tuesday December 15th

Dave didn't have much energy today, but hopefully with the weather getting warmer the next few days he will feel like getting outside and going for some short walks. We heard from family in Nashville KS today. Earl, Iona and Robert Westerman sent us a card with a note that they had been following the blog updates....we also heard from Steve, Lynette, Anniston, Phil and Gloria...also Nashville family. They sent a note of well wishes and prayers and an unexpected but appreciated gift card...it is unbelievable the numbers of people that this blog and Facebook reach. We have PET scan and MRI scheduled for Monday and Tuesday of next week, but won't know anything until probably the 28th when we head back to KC. I ordered the turkey and ham for Christmas Eve dinner....the kids, my mom and I are so looking forward to some well deserved family time together. I hope that Dave feels good that day...it would be the perfect Christmas gift for all of us!! Blessings and thanks from us to all of you.....

Monday, December 14, 2009

Monday December 14th

Every day is a gift and today was one of those gifts.....Dave slept through the night and was up for the rest of the day. I had errands to run and he rode with me....it was nice to have his company. We had some finance paperwork to do today and he spent the day getting that organized. Collin Adams and his mother came by today ( he is the one that began the Facebook for Dave)...they brought us some enchiladas that were YUMMY......It was great to meet Collin, he is very caring and has made a huge impact on our lives. Hopefully Dave can have more good days.....Keep the prayers and positive thoughts coming his way.....

Sunday, December 13, 2009

Sunday December 13th

We slept late today, until 9:30.....Had laundry to do and groceries to shop for, but I am not complaining, it is good to get back to normal. Dave ate some today, and though not alot is was a good start. Kim and Mark Pennington came by with some members from their church this evening and they sang Christmas carols in our front yard. What a wonderful surprise.....Dave was feeling overwhelmed and sad today; his back still causes him pain, their act of kindness came at just the right time. I know that they lifted his spirits. Thank you Penningtons!!! Kip and LeeAnn came by as well...they have been right there with us every step of the way........Cayte and Matt came by to get some of their Christmas decorations...YEA.....my storage rooms and closets are finally thinning out!!!! My prayer this year for Christmas is that Dave can feel well enough to enjoy the day.....Blessings to all.....

Saturday, December 12, 2009

Saturday December 12th

As I wrote this date I just realized that it is my little sister's birthday today...If you read this Robin...HAPPY BIRTHDAY.....We are home!! Ku Med took great care of us, but we were glad to leave today. Dave is not sure that he feels any better, but we did not get alot of rest so maybe in a couple of days he will have more energy. I hope things look up for him so that he can have a good Christmas. I am cooking and having the kids over so maybe I can put a couple of pounds on him as well. His drastic weight loss is a great concern to me, but I am trying to pick my "battles", I am certain that he is tired of me nagging him about it....Dr. Doolittle is scheduling scans for next week sometime and I would suspect that he will go in for blood draw as well. Our appointment is the 28th (in KC) so we will hopefully know if the Interleukin did as it should. At the moment the only certainty in our lives is that we are home together and that is a good thing....

Friday, December 11, 2009

Friday Decenber 11th

Hope everyone had a great week....we are hopefully coming home tomorrow. We are both really tired. Dave had a rough night last night neither one of us slept at all. He has decided to call it quits for this time around. He took 11 treatments which is still really impressive....we have a drs. appt here on the 28th....between that time he will have bone scans to see if the Interleukin is doing what it should. He will be sent home with an appetite stimulant so that hopefully he will begin eating again. He has lost about 35 lbs and still has no appetite (although he would love to have the desire to sit down to a big meal) It is caused by the cancer and the meds.....I am so looking forward to some quiet time with my family...we are going to squeeze our Christmas in sometime between Chris and Cayte's work schedule.....Keep praying......we love you all and are so strengthened by your faith and your friendship.

Thursday, December 10, 2009

December 10th Thursday

Dave received treatment #9 at noon and #10 is scheduled for 8:30 tonight. The drs. still say that all of his labs look good. They are going to consider an appetite stimulant so that he can get his weight up....he was 150 .....I know that the loss of appetite is part of it, but he needs weight and calories.....Dave really wants to go back to work if only on a part time basis. I really do think that if he could eat he would feel stronger....Cayte went back to Wichita this afternoon, she works this weekend and needed to be home in her own bed. Chris will leave sometime tomorrow. Hopefully we will be heading back sometime this weekend too...it will be good to be home!!

Thursday December 10th

I did not get around to blogging yesterday. It was a fairly good day for Dave....they are warding off the side effects, but at times his body throws all of us a curve and doesn't react with the predictability that we have come to expect! Fever got to about 105 last night, but our nurse Marlon (he is THE BEST!!! we love him)....put Dave on a cooling blanket and that seemed to bring the fever down more quickly. I stayed the night with Melanie and Larry (and Murphy my therapy dog)....they had really yummy pizza, Caesar salad, lite beer and birthday cake for me, it just doesn't get any better than that!! Cayte had gotten me a really soft warm blanket from Bath and Body works and Mel got me the bath robe to go with it. As we were eating pizza the UPS guy came and brought a gift from Kip and LeeAnn (probably mostly LeeAnn ....HAHA) and it was a fun plaque and my favorite candy bar...Almond Joy and a card...she sent Dave a Golf magazine, probably the ONLY one without articles about dear Tiger.....it was really a special birthday because of the effort that these friends put into making it normal....So as of today I am proudly 58....I can say that I have two great kids, a wonderful husband that after 25 years I would marry again in a heartbeat, and the most fantastic friends that a person could ever want....

Tuesday, December 8, 2009

Tuesday December 8th

This has been a long 24 hours for Dave, Cayte and for me. Dave received a treatment at midnight and then had really high fevers (107) so we were all up for the rest of the night. They iced him and turned down thermostat as well as watching him on a fairly constant basis. There was a period of time that he was not responsive to any of us...it was really scary...but as the temp declined he became more aware of his surroundings. His side effects have not followed the timeline that we had become used to but we still know how to ward off the worst of it with meds. His bloodwork continues to be good, his heart rate is a bit tacky at times, but he is hooked up to so many wires....everything is being watched.It is really nasty here...it has rained and misted all day. Chris came to the hospital today but I made him leave at around 5:30...he is staying with Tony Baldassarre. It is going to be a slick messy time to drive once the night temperatures set in here. Cayte and I went to Melanie and Larry Bowman's at around noon today to shower and change clothes....of course their dog Murphy was a perfect hostess....she was what we needed...a little doggie love is just the thing to chase away the blues!! Needless to say, Cayte and I are staying put here at the hospital tonight. We will just see what tomorrow brings.

Monday, December 7, 2009

Monday December 7th

We had our consult with Dr. Doolittle this morning and were admitted to KU Med by noon. Dave received his first Interleukin at 4:00, and is scheduled for another 13....hummmm... well see.........They were "loaded and ready" with the meds for the after effects. We were informed this morning that they are looking at #3 and #4 treatments....we come back on the 28th for an office visit, but between that time we will do scans in Wichita to see how well the meds have worked. Nikki Hoffman is an ICU nurse on Dave's floor, but she is not his nurse, can't attend to friends, but she has been in and we had a great visit. The Drury Inn was a perfect location to stay...that is a definate go next time around....Thier king size beds with lots of pillows definately top the chair that I will sleep in tonight. The weather is really COLD here.....glad to be inside.....

Sunday, December 6, 2009

It is 4:oo on Sunday and we are in KC at the Drury Hotel. My sister-in law and her husband made us reservations here...thank you so much Tim and Janice!! Monte Schreiner just left...he drove us here. His Brother-in law went to the Chiefs game this afternoon and just picked him up here on his way back to Wichita. The weather held out....now lets hope the rest of the week is good for travel. Our appointment is at 8:45 in the morning, as soon as we are finished there I am sure they will send Dave on to KU Med where they will begin treatments. He was better after the last round....hopefully this is going to enable him to get back to some of the things that he has been missing.....He has been nauseous and lacking an appitite for the past couple of days.....I will be anxious to visit with Dr. Doolittle tomorrow to get his perspective on all of this. They have been doing bloodwork this entire time and he will have the results of those tests. Thanks for your support!! I will keep you posted......

Friday, December 4, 2009

Yesterday was a tough one for Dave, he did not feel very well. Lots of abdomital pain. I did what I could here at home, but did not like his coloring and increased pain so called our family Dr. He had us bring him directly in the office. After scans he felt it was a combination of pain meds, not much food and limited activity. He is resting today.....I was sad because Dave had looked so forward to going to the MSMS Spirit Assembly. I just wish that he could have a fun day and not have to worry about health issues.
We head to KC on Sunday. Monte Schreiner is going to drive us up there......Monte's brother-in-law is going to a Chiefs game and will bring Monte back after the game. Again, how do I ever thank everyone for the kindness and friendship that we have received during all of this.....We have heard from every school in the district....the money, gift cards, love and support make me cry....I have tried to keep up on thank you notes, but I am afraid that I haven't gotten to everyone. We are so greatful and so overwhelmed. Drew Bonner and Kristian Jacobson came over yesterday with a check from the high school "Charity Hat Day". Drew told me that the only thanks he wanted was for Dave to "just get better".....it is that spirit of kindness that has gotten us through every day.....
I will continue to keep you posted as things progress......my love...thanks...and best wishes go out to each and every one of you........

Tuesday, December 1, 2009

This has been a great week. I have encouraged Dave to walk each day and sit on the deck for fresh air. He has gained 5 lbs. which is good .....sure wish I could get more on him before the next round of treatments. He has not felt very well today...hopefully tomorrow will be a good day. His sister Diane is coming over Wednesday to spend some time with him. It will give me a chance to do some things outside the house.....Monte Schreiner is going to drive us to KC on Sunday....We begin treatments again on Monday. I will keep you posted.